Quote:
Originally Posted by daylilyfan
I've had RSD since 2001. I have not had much burning with it, until recently. About a month ago, it spread down my arm into my hand, and now I am having the burning. It also tingles like it is in a big vat of 7-up.
I found that the "RSD cream" that my doc has compounded for me works pretty well for the burning. It has lidocaine, ketamine, gabapentin, baclofen, amytriptolin, and a couple more things. (pardon spelling on meds) I am sure I have posted the "recipe" on the forum before, but if you want it, I will look it up. Doesn't help much with the deep bone pain though.
Jules
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How long does your cream work? It is clear-colored? Does it stain your clothes? I would really appreciate a copy of your recipe so that I can ask my PM doc to write me a script.
I currently use Voltaren gel for the pain and burn that I get on my lower right leg and on the back of my head and neck (I rub it in on my hair,which is pretty short, and then try to comb it out gently so that you can't tell that it's there). It works for a little while, but I need to re-apply it often. I also put the Voltaren on my forehead and other parts of my face that are starting to hurt a lot. Anywhere that I can't put one of my Lidoderm patches.
Thanks and take care, Sandy