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Old 08-19-2009, 11:35 PM
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Join Date: Jul 2009
Location: Australia
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Join Date: Jul 2009
Location: Australia
Posts: 108
15 yr Member
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Quote:
Originally Posted by sjohnson54 View Post
Thanks for your note, Michelle. It helps to know I have company in limbo. I have heard about a link between EBV and MS.

No one in my family has MS. I am 55 years old.

Have you had a lumbar puncture yet?

Susie
Hi Susie,
No I haven't had a LP yet.
My neuro said she didn't want to do such an invasive test yet. As all the tests have been clear so far, i think she's just seeing what the next MRI shows.
She said after my 3rd exam she didn't think I showed any 'suspicious' neuro signs, even though my symptoms are 'suggestive of MS'.
I asked her directly can she rule out MS and she said yes!
But yet she still saying have another brain/c-spine MRI in November (6 months after the 1st one) to see what's going on, as 'the lesions can take a while to form'......
I'm confused.
I don't think they like to suggest you 'might' have a disease/condition unless they're really sure.
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Michelle, 50yo, Australia
No dx - just questions.
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