Hi and Welcome.
It took me three years to get Dx'd with MS and that was after I had symptoms the doctor could see on his exam. Of course they didn't have MRI's back then, but I had a VEP and a LP and many other tests for a week in the hospital..

I did not have classic symptoms, but presented with odd ones and weird tremors. Years before that I had symptoms that were sensory, things the doctor could not see, but I could feel, like buzzing in the body, shocks, swallowing problems, etc.

It was harder to rule in or rule out any disease in the stone age. But in 1981, still very young, IMO, I was dx's MS. They seem to think I had it since I was 16 years old.

It is sometimes a long process (years) and others get a DX in days. It is a "wait and see" disease.

You really don't want to get the wrong DX so as hard as it is to wait, it is for the best. We were all in Limbo at one time or other. I wish you both good luck in finding out what is wrong.

We all need to know what is causing all our crummy symptoms. We know we don't imagine them, they are real.

And yes it is scary at times.