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Old 08-20-2009, 10:31 AM
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leaningin leaningin is offline
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Join Date: Mar 2008
Location: Reno, NV
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15 yr Member
leaningin leaningin is offline
Junior Member
leaningin's Avatar
 
Join Date: Mar 2008
Location: Reno, NV
Posts: 40
15 yr Member
Default Back Pain

Quote:
Originally Posted by erinhermes View Post
So i have been having major issues with my back recently. Went to see my neuro to test for neuropathy - negative. He did say that i have a few bulging discs and sciatica, but it shouldn't be causing this much pain.

I trust my neuro completely, but want to be pain free, so i went to see a "pain specialist" today to check out my back. I did tell him - the ps) that i have had several mri's, as well as extensive testing from dr i - well, he (the ps) says that i have extensive nerve damage on my left side and need cortisone shots to help alleviate the pain.

Given the amt of pred i'm on, i decided to call dr i and let him know that i have the procedure scheduled for friday - he called back and told me that he does not trust this dr @ all and doesn't want me to have it done. I reiterated that i am in constant pain, to which he responded that he thinks it is ob/gyn related, but was really upset @ the prospect of me getting shots in my back. He told me i am @ the max of pred for now and thinks this guy is a quack.......

Now i am in a quandry. I need to be pain free on the days when i feel good enough to get out of bed, i cannot just lie around and take pain meds.

Any suggestions? Again, i love my neuro! He truly saved my life! He has been there every step of the way for me, but i really don't want to live a life being in pain.

it seems like since i have been dx'd with mg everything has just gone downhill - my bp, heart, everything. I am scared, but i do know things are going to work out.

Any advice would be appreciated!

Big hugs!
Erin

ps i am not yelling - my old comp died and i am still trying to get the new one figured out - i typed this out 3 times and it disappeared into cyberspace.
I just got out of the ICU for the past week. As you know they keep you very tethered to the bed with all the wires you are connected to. After I got out my back hurt like crazy. I really believe that it is partly due to being bed bound. You mentioned that you are too weak to get out of bed often. So even though I am short of breath, I have been taking short, slow walks around the block. It really seems to help loosen up my back and get the blood moving again. Remember - a body in motion stays in motion - a body in the ICU is TOAST. :-)
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