The only real requirement for a RRMS dx is "dissemination in time and space", so that means two neurological events, occurring in two separate neurological areas, separated by a 30 day break. They can assess this with either neurological exams (clinical testing) and/or a combination of clinical AND MRI/LP/VEP results.

In your case, it seems you have had at least one event, so they went looking for the evidence by way of VEP and MRI ... to no avail at this point. Given the number of eye events you've had, I would think the VEP would show if there is Optic Nerve damage by now. Did you end up seeing a neuro opthamologist for testing for optic nerve pallor?

BTW, they do not need to use dye in a MRI, to see what would be evident without dye too ... The dye would just more easily identify those lesions that are "inflammed", but you didn't have any lesions at this point anyway.

So, you are on "watch and wait", or in limbo for MS, at least until something else happens. A LP might show O-bands, which are not unique and/or will be necessarily visible (just like the MRI lesions), but it could be another piece to the puzzle if you do have them. This is an invasive procedure though, so you want to consider that. I have heard of a handful of people who've gotten the dx with LP results alone, but those people will normally struggle for YEARS before that happens.

MS doesn't always show up in our testing right away, but most of us do not have to wait very long before it does. I did a poll on another forum, and for those who were watched and tested appropriately along the way, and who did not have compounding health issues (like HIV, polio, etc.), the MS almost always becomes apparent within 6 months to a year.

You are obviously getting worse, so have they offered any suggestions on what this might be, besides MS?

Cherie