I understand your pain, and your frustration. I ended up with ON and AD trying to find a cure for TN. Now, I have all 3. I did everything that was asked of me, and yet, I ended up in worse pain. It was hard to comes to terms with.
My husband use to say, Doctors only practice medicine... then when he was angry he would say, and I am sick of them practicing on you! It is so hard on those who love us isn't it? *sigh
Are you going to a pain clinic? I have always found more compassion there. It is vital to have a doctor you can talk with openly and honestly with about your pain, and how it is effecting your life. They are out there. I have two wonderful doctors who have helped me over the past 11 years.
WOW, that just hit me, typing that out... 11 years! Back in year one, I remember thinking I couldn't survive the day..... amazing what one can adjust to.
Keep talking ((Julz)) we understand
Nikki