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Elder
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Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
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Elder
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
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Go to NMSS.org and find tons of support, info and help.
I am so sorry you are going through so much. it sounds like alot to carry. There are more than 100 things that can mimic MS. Its a process of ruling things out. Blood work to check your B12 and Vitd. Lyme, Lupus, and infections. Then you need MRI to check for lesions in the proper places, and a spinal tap to check for remnants of mylin being eaten. its not a quick process, even for those with glaring symptoms, and big MS centers looking after them. You must have 2 clear periods or disease activity with at least a 2 month to 2 month break inbetween relapses for most to qualify. There are some that qualify without meeting that critera, but its rare. It really is a huge laundry list of things that can, and do mimic such events. I wish I could color code the world.
I want eyebrows to change color when we are sick. If you have heart disease, your eyebrow turns red. MS it turns orange. Lyme is green, and so on. Wouldnt that be great to go to the MD and say "hey! my eyebrow is orange, what does this mean?"
hang in there. Make sure you get a team on your side, and keep a journal. Keep track of what tests you have had done and what the results were. Going to an MS center can help. the NMSS.org has a list of ones close to you.
Till then, pull up a chair and hang out. We have folks in every stage of this awful disease. From limbo island, to PPMS. your in good company.
__________________
RRMS 3/26/07 .
Betaseron 5/18/07 .
Elevated LFTs Beta DC 7/07
Copaxone 8/7/07 .
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Last edited by Dejibo; 08-22-2009 at 07:38 AM.
Reason: lost my mind
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