My mom just got diagnosed with this and the nerontin is not really helping.
She takes 100mg once a day. But we bumped it to 200mg. She is not having really bad episodes as before neurontin, but still in agony. She had a stroke in 2006, and cannot communicate or walk on her own. What worked for you as far as meds.? I don't know if her DR. @ Vanderbilt Medical Center will consider surgery because of her brainstem stroke. They said it would take a couple of days but this is the 3rd day on this medication. I know it is helping, as far as easing the pain a little. Her attacks are fewer. But she still has them. I just wish I could take the pain for her!!!!