Nicky,
I don't have your infection, but your muscular symptoms you mention, with your tongue, & jaw is what I have also, along with the rest of my body. I am set up with the MG specialist, for eval & treatment, I already know I have denervation atrophy from my muscle biopsy in my leg, Emg & ncv showed it also. But am waiting to talk with the new doctor about this progression.
Sorry to hear you are suffering with this to.
Mary