Quote:
Originally Posted by Macophile
I don't know if this is the right thread for me or not, but I have had pain from peripheral neuropathy (This they think is somehow related to an Auto-Immune Disease) and Fibro for 2.5 years now and I am getting to the end of my rope with just "dealing" with it. I can barely walk around the block without crippling myself for the rest of the day if not the next one or two sometimes. I can't fall asleep at night w/o having someone holding/rubbing my feet. My pain clinic Dr. is not the nicest person my latest appointment with him was yesterday and all he could say was "I really don't know what you expect be to say." and "everyone else with your problems has the exact same issues" and as the kicker he basically told me I should join a support group instead of seeing him I guess, as he didn't give me any follow up apts. This is better than what he said when I last saw him a year ago "Don't bother coming back unless you want to get the steroid injections"- which I did not want as the previous ones, while dif. did not really help.
The thing I am wondering is how many people with Fibro and Peripheral Neuropathy are without any drugs for the pain?
I am on Lyrica, Gabapentin, and Baclofen for the Peripheral Neuropathy and on Methotrexate for the Auto-Immune issues. I think it would be a good idea to add something in to manage the pain since it is not controlled, but I seem to be meeting dead ends. So I am wondering if it is because of the type of problem that I have that he is not giving me anything or is it something else? I can't imagine having to live not being able to do most of the things I want or need to do (like to to school, or fall asleep).
I'm sorry for the rant. I guess I am just looking for some feedback.
|
Pain management clinics are funny they want you to take a variety of drugs
to help manage your problem ignore the side effects of all these meds and
essentially avoid prescribing a Pain Pill i.e. narcotic which usually serves the purpose without the quantity of these other meds, i have nerve impingments
herniated discs djd stenosis early kyphoscoliosis ive been prescribed hydrocodone and nsaids. therapeutic measures, my pain specialist prefers that i take neurontin for the radiculopathy 3x per day and an antidepressant
to sleep doesnt care that they make me sleep and less alert all day also weight gain
just seems to think its better than taking the narcotic which actually does make me feel better and functional w/o the side effects im not a surgical candidate so i guess its a rest of my life issue. personally I think you should have a say in determining what the quality of your life consists of and if pain medication helps you to manage then thats what you take not a multitude of
various meds which leave you feeling pretty bad off also i recently read a study which showed that peop[le with nerve pain manage better with prn narcotics find out why your physician is refusing to prescribe you any.