Thread: I'm Crying
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Old 08-24-2009, 08:27 AM
stayathomemom stayathomemom is offline
Junior Member
 
Join Date: Apr 2009
Location: United States
Posts: 40
15 yr Member
stayathomemom stayathomemom is offline
Junior Member
 
Join Date: Apr 2009
Location: United States
Posts: 40
15 yr Member
Default I completely understand...

I am also going through a similar situation. IVIG IS working for me at this point and I am extremely grateful for that.

I had an infection kick me into full MG mode, after several years of holding my own (with Imuran and Mestinon). Two years later, I am still not as I was.

Has your neuro considered plasmapheresis before giving you IVIG ?

At the beginning of the summer, my neuro ordered plasmapheresis, immediately followed by a large IVIG dose. A few weeks later, I had another large dose of IVIG and that got me through the summer.

I also have asthma & have taken Prednisone for that,as well as MG. I start on a low, every other day dose & work up (which seems to be the opposite of what most neuros do, for some odd reason). My neuro tried this for me & it has worked out much better.

This place is wonderful for support. I am so glad you have decided to post here.

Jenna
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