Junior Member
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Join Date: Apr 2009
Location: United States
Posts: 40
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Junior Member
Join Date: Apr 2009
Location: United States
Posts: 40
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I completely understand...
I am also going through a similar situation. IVIG IS working for me at this point and I am extremely grateful for that.
I had an infection kick me into full MG mode, after several years of holding my own (with Imuran and Mestinon). Two years later, I am still not as I was.
Has your neuro considered plasmapheresis before giving you IVIG ?
At the beginning of the summer, my neuro ordered plasmapheresis, immediately followed by a large IVIG dose. A few weeks later, I had another large dose of IVIG and that got me through the summer.
I also have asthma & have taken Prednisone for that,as well as MG. I start on a low, every other day dose & work up (which seems to be the opposite of what most neuros do, for some odd reason). My neuro tried this for me & it has worked out much better.
This place is wonderful for support. I am so glad you have decided to post here.
Jenna
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