Hi everyone
I am back on this site after a long break due to many medical issues I had going on. Originally I was diagnosed with TOS - Thoracic Outlet Syndrome. I had a very rough time with that. I had surgery in January 2008 for it. I then had thoracic spine surgery 5 months later due to 2 herniated discs causing spinal cord compression. It was a rough year. I have seen so many Dr's and so many have mentioned and MS. They kept taking blood and testing but nothing showed. I also had several brain MRI's and it was negative for MS is what they have said. I have been exhibiting many many symptoms of MS. I also have CRPS/RSD. I do have the burning pain and most of the symptoms that go along with that. I have terrible burning pain 24/7 plus changes in color of my skin. I hate this redness I have everywhere. Especially on my face and upper chest. I have so many things going on and the Dr's keep saying I'm such a difficult case. I also started having eye trouble. I was getting pain in the right eye, headaches, blurry vision and sudden loss of vision along with naseau. FOr a few days it was so painful to look left, right or up and down. i could only look straight. Lights bothered me and I could barely make out objects. It has gotten a little better but I can tell my right eye is really bad. I have lost color vision in the right. I saw a neuro opthamologist. On the color test, I got 2 out of 8 correct for the right eye and 8 out of 8 on the left. My vision changes frequently. It just changed again for the worse after being checked just in April. I have 3 pairs of glasses now. I never know which will work best.

The Doctor's don't feel this eye problem is related to the TOS and RSD. They think it's something else. I had and OCT test done and it showed optic neuropathy. My neurologist called last week and told me that they found that I have optic nerve damage and now they have to look further. I need more tests. They are looking for something. My PT said it sounds like a autoimmune or MS diagnosis is in the works.

Can MS start in the eyes? With all my bloodwork, MRI's and a spinal tap being negative for MS, can I still possibly have it or starting to have it? I was reading some info on line that the optic nerves can be the first sign. Can lesions start there and they just haven't found them yet? Has anyone been diagnosed with MS from an eye specialist? I am wondering if I have MS and not RSD or do I have both. They seem to be very similar diseases.

They feel as though something else is going on and been missed. I have trouble with my legs and spasticity now. My muscles get so tight. I have trouble walking at times. My knees even give out at times. Sunday was awful and I just couldn't walk right. I was leaning. My gait is way off. I'm a mess. I was just wondering if anyone could give some insight to this.

THANKS!