I have a few things on my plate that I would like to share....

My nephew still is in so much pain. He has seen specialist after specialist to try to figure out why he has so much extra fluid in his brain. He has to have lumbar punctures to relieve the pressure and takes so many pills! They are trying to protect his eyes from permanent damage while they try to figure out what is causing this.

He just turned 13, the pain can get so bad that all he can do is hold his head and scream...it just kills me to see him in so much pain! praying for answers
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Evelyn, one of the residents I have grown to care for passed away last week I have only known her since Feb, but I can't believe how much her death is effecting me. I had to leave I was crying so hard. She was alone, no family surrounded her as she left this world

After her death I tried to tell myself to not get so attached, to stop visiting them, but I just can't! I see them every day, they just light up when they see me. And for many I am their only regular visitor... how sad! I don't know how those of you who work at nursing homes do it, Angels on earth in my book
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I am going to be having surgery. I can’t believe I am saying that! I swore after all the failed brain surgeries that I never would again. It isn’t that I regret the surgeries, it is more that I got my hopes built up so high, that when they fail, it plunged my world into deeper darkness.

I had the brain surgeries for trigeminal neuralgia, they left me in worse pain, and also caused occipital neuralgia and anesthesia dolorosa. There is nothing more that can be done for the TN, there is nothing that can be done for the AD…..I have come to a sort of peace that I will have to live with this pain for the rest of my life.

The only condition there is hope to help is the ON. I have the ON pain constantly, but then I also have flairs. The combination of all 3, is just horrific. In the midst of attack after attack, I beg God to take me, but He seems to think it isn’t my time yet. It is to the point now where I can’t sleep more than 15 mins at a time. I can’t lay on my sides or tummy due to the TN pain, so my only choice is to lay on my back… this is where the occipital nerve is.. Accck

I just got over a 5 day ON flair, literally I couldn’t lift my head without vomiting. The pain was intense. I never liked it! But now, Lynn depends on me. I NEED to see him every day. I have to try again, for him. I must admit I am scared to death. Not of the surgery, but of getting my hopes up.