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Old 08-24-2009, 12:56 PM
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SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
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Quote:
Originally Posted by notasperfectasyou View Post
Thanks Sally,
Have you been symptom free since the second one? It would be a really great thing if we could all hold back the effects of MS like that. Do you attribute that to a particular intervention? I'm always interested to know what works for folks.
I was on absolutely no medication or special regimine while in that long remission. After my attack in 1993 at 53, I had IVSM and pretty much went back into remission......but, it was short lived..

I then tried Avonex, then Copaxone, but progressed, in the next 4 yrs, to SPMS.. I discovered LDN in 2003, but, since I was already SPMS, It wasn't as miraculous for me as it was for the RRMSers....but It did stop/slow the progression again, for me.

LDN is not a cure but sure closer than the other DMDs.

Question...How long is a person suppossed to keep taking the ABs? Forever? and....What is the longest someone has been on the Vanderbilt meds and stayed cured/in remission.

Thanks,
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~Love, Sally
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"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
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"Thanks for this!" says:
notasperfectasyou (08-24-2009)