Quote:
Originally Posted by SallyC
Question...How long is a person suppossed to keep taking the ABs? Forever? and....What is the longest someone has been on the Vanderbilt meds and stayed cured/in remission.
Thanks,
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Sally,
I should be clear about 2 things, 1) I started this thread to really open up the idea that maybe it would be thought provoking to ponder what "cure" might mean - I'd start a totally different thread if I wanted to really talk ABX details, 2) I don't pretend that this is my idea, I just hope to share and shed light in a new place.
One case has been posted here before. I did not know this until you sparked me to do a search on the boards. Here's the link to the original thread, "
Some Research Finds Over 70% Of People With MS Have Cpn Infection". There's a little article I've found about Sarah's case in Hosptial Doctor from 2005 titled,
"Ignoring the evidence". Sarah is no longer on ABX and she is still improving. It is very easy to find her on the internet. The protocol is a developing thing. For example, pyruvate was added recently. This makes it difficult to say how long one needs to be on it. But, I think Kim will be on it for 4-5 years.
There are others. Most post and share at websites that are have forums for those taking antibiotics for MS. There are other anecdotal stories about folks who are doing well, improved and more abled. Most people would not generally stick around a website that isn't friendly to them or their ideas. For example, I recently read on another board about a member who was leaving over inflamatory language. I know I can't share Kim's story if I'm only going to share it with folks who agree with the regimen.
It doesn't work for everyone - but it does work for some and isn't some folks recovering from MS better than none?
Thank you for your comments.

Ken