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Old 08-24-2009, 03:19 PM
gonnamakeit gonnamakeit is offline
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Join Date: Oct 2006
Location: Arizona
Posts: 392
15 yr Member
gonnamakeit gonnamakeit is offline
Member
 
Join Date: Oct 2006
Location: Arizona
Posts: 392
15 yr Member
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Just wanted to say here that I did the ABX protocol for almost a year and it did absolutely nothing for me. I could not tell that I was even taking anything while on it. The drive for me to get to the physician who prescribed it was 14 hours each way, so I was serious about trying it and it failed to help me.

You among others have been told that it does not work for everyone and no one knows why. One guess might be that the ones it works for actually have the CPn while others that it doesn't work for don't.

During the lifetime of having this disease I have checked out everything I know to check out and there is nothing to this day that treats SPMS with the possible exception of LDN.

So your statement that trying new stuff can get old did not set well with me, especially since again, you do not have the disease and have not had to cope with all of the crap this disease throws our way for years.

Most of us here have tried all of the meds available to us and would try more if there was more to try. I am aware of most (probably all) treatments being discussed on the net as are most others here and we have to decide for ourselves which ones make sense and which ones don't.

gmi
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"Thanks for this!" says:
notasperfectasyou (08-24-2009), SallyC (08-24-2009)