Thanks everyone for your helpful replies. I really appreciate it. I am very worried and feel that definitely something else is going on. It's weird that so many Dr's over the last 3 years have mentioned MS over and over again. I hear it everytime I go to the Dr's and give my symptoms. The nurse from the eye Dr called me yesterday. I am going to Wills Eye in philly. She was very helpful and explained some of the tests they want to do. I have to have an ERG and a multifocal. The OCT test showed optic nerve damage and something that is definitely making them lean towards MS. She told me the signs are there but I would have to get more info from the Dr. Also my neurologist has been in contact with them so I am waiting for him to call me and hopefully give me more insight as to what is going on. I just had an MRI of the brain in June but it didn't show anything. I was in the hospital for 4 days. The neurology team said I have 6th cranial nerve palsy and it looked like something wrong with 3rd cranial nerve. My right eye is the only eye affected right now. My eye lid droops. It looks swollen at times which could be from the RSD. I can't even open that eye all the way. If I try to open it with my fingers, it hurts and just doesn't cooperate. My pupil also dilates and gets big then also gets so small you can barely see it. My two pupils are rarely the same when examined and in general. This sure looks like signs of MS after reading information online. Also, I never realized I had color issues until they had me close my left eye. Everything red looks pink, etc. I was shocked then I got upset. I just don't know how much more I can handle. I've been through so much already. I guess I can have RSD and MS. Both dibilitating diseases. Plus the TOS issue.

This is what really makes me worry...yesterday I seemed pretty good all morning then I had a sudden attack. I was with my boys out at the thrift store and I suddenly got very dizzy, hot feeling all over, ears ringing and blurry vision with bright spots. It was horrible and unfortunately this isn't the first time this has happened. It's happened a couple times while I'm out. I had it happen at the grocery store and when driving. I pulled over and waited for a bit. It now makes me realize this keeps happening. I never know when it's going tohappen either. I was taking my meds and it still happens. I came hope and I could barely walk. I couldn't even lift a piece of paper. I dropped everything I tried to pick up. I was in pain all over and also like this numb feeling in my legs and hands. My vision was just completely awful. My son was sitting on the couch in front of me and if I didn't know it was him, I would not have been able to make out who it was and if it was male or female..he was a complete blur. If I covered my left eye, I couldn't see much of anything. I didn't feel well for a while. I was so out of it. I couldn't remember anything I did..I was doing things and not even knowing what I was doing. By dinner time, I couldn't even make dinner. I tried but was so slow. IT was like this huge attack and it subsided and now I'm better today so far. My vision was even better this morning, I am wearing bifocals now to help me read and see.

I am just wondering if this is really MS and it just never showed up on any tests. They did so much blood work though and a spinal tap in June. They thought MS but nothing came up. That's why I was wondering..can lesions be in the optic nerves and will these tests show? It's hard for me to go through any tests right now because my RSD is so bad. it flares up for a week after any kind of testing. The nurse said I really need to have these done. Lucky me

Thanks again for your help and support...I don't really understand MS either. I'm still learning about the RSD/CRPS. I am seeing they are very similar.