Hi JCPA,

I was also diagnosed in July of this year. My symptoms were just ocular -- double vision and droopy eyelid. Neurologist put me on Mestinon and Prednisone. Saw a major improvement the first day on the meds. Had a CT scan which showed growth on thymus. Last week I saw the neuro for the second time and he said I should have thymus removed, but it is not something which has to be done immediately. He said there have been major advancements in the surgery and luckily in Cincinnati we have several cardio-thoracic surgeons who do the procedure using the DaVinci robotic assisted method. Two of our hospitals have the machine. Way less invasive (couple small incisions) and the recuperation time is greatly reduced. I asked if I could wait til after the first of the year and he said yes. I'm going to schedule an appointment with the surgeon in the next month or two to talk the procedure.

So my advice to you since you live in a major metropolitan area is to check out if yours can be done this way.

Good luck.