Wow. I have tongue weakness and I feel too tired to hold my throat open to breathe sometimes. I use the breathe right strips at night to help. Talking is hard too. Slurred speach comes and goes. It seems to hit me every 2 weeks!
I am seeing Nuero number 3 today. I am undiagnosed and they keep passing me around! My family sometimes gets frustrated with my weak days like I am making this up!
My MRI and vision evoked tests for MS are all normal. I have upper leg and arm weakness but the tongue involvement is the worst!
I also have muscle jerks and I'm scared of having ALS.
I wonder if people with MG get any annoying muscle twitches in large muscles like legs, back, upper arms? It's common in ALS so it really scares me. The good news is I get weaker after using muscles but in the morning I am almost normal untill I roll out of bed for about 15 minutes. I THINK in ALS you are weak all the time.
Maybe this third nuero will have a clue. Just wondered if anyone twitches? I have heard that the mess can cause this but I'm not on any.