Quote:
Originally Posted by Debi Brooks
MJFF is very interested in seeing if we can "validate" subtypes...such information would certainly be useful in the clinic (better inform families about expected course of disease, provide treatment guidance to physicians) but could also prove to be extremely informative for clinic trials (design and recruitment exclusion/inclusion criteria)...you can look at the projects we funded last summer via the press release below and/or our searchable grants database at michaeljox.org.
http://www.michaeljfox.org/newsEvent...cle.cfm?ID=197
Debi
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Neil and all other interested folks,
I was curious as to the outcome of the MJFF initiative which dates from 2007. Here's a summary of
outcomes at PDOnline Research
Mainly, research seemed to confirm existence of subtypes. While other could not corraborate. Some even suggested there are no subtypes but just a representation of the various stages of disease progression and response to meds. This may be a viable explanation for some PWP, but I think that anyone who knows a few PWP would beg to differ on this.
Laura