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Old 08-26-2009, 10:56 AM
SarahSE SarahSE is offline
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Join Date: Aug 2009
Posts: 3
15 yr Member
SarahSE SarahSE is offline
New Member
 
Join Date: Aug 2009
Posts: 3
15 yr Member
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Thanks for the replies, mrsD and daniella. I have seen a neuro for this for a few years but she is stumped. She checked my B12 levels in 2004 and they were actually elevated (I take 4mg B12/day along with Folate & B6 for a genetic condition called MTHFR polymorphism). I've also seen a medical geneticist, who thought that because my LDL is so low (40) I might have hypobetalipoproteinemia, which prevents the body from properly metabolizing fats, leading to chronic Vitamin E deficiency and associated nerve damage. On his recommendation I've been taking 400iu water-solublized Vit E for 4 years now and haven't noticed any improvement.

Interesting to think about gluten and MSG -- I've tested negative for celiac, but I guess gluten intolerance is still possible. I have low thyroid and have taken thyroid meds for about 17 years (gee, I think I've listed every one of my medical conditions here!). I do have some numbness in my big toes and feel pins and needles in my soles, sometimes electric-feeling. I will definitely look into Biofreeze -- that sounds awesome! I've tried other menthol gels but couldn't feel them. No redness. I love the doctors who touch my feet and say, "Funny, they don't feel hot to me..." Yeah, you're not wearing them on your legs!! Topamax was prescribed by a physiatrist, who is not an expert on this but has treated people with it before. I know I am getting to the point of needing to use an Rx, I'd just rather not...hard to add anything to my life that might impair me while my kids are so little!!

Thanks for your help, you guys. I appreciate the suggestions and will look into them.
Sarah
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