bummer! sorry to hear that. i just started today. 50 mg daily along with the 6 pred i had been taking. so far, so good. my neuro wants weekly blood for the first 3 weeks due to possible complications. he said he's had good results with it but it's not for everyone and can be dangerous in a few cases. any alternative to 6-8 mos. on steroids was attractive to me. my responses to treatment/tests have been fairly predictable so far so i guess i'm a good candidate. i'm going to be watching for the side effects you described.