I am Linda, my friends call me Dew..nice to meet you. Sorry it under the RSD umbrella. I too had RSD start in my right knee, injury in 3/07 that started burning immediately, then surgery 5/07..injury in 12/07 ,same knee,and surgery in 1/08..WC injuries. It took over 15 months for dx to be made..1 1/2 yrs of PT..My PM doc told me that too much time elapsed before he got to me for blocks, SCS, to do any good! I also walk with a cane, and have been called House as I use the cane on my right side,LOL!
I am on SSDI now, disabled because of this culprit. It has spread to both legs, spine, both arms and hands. Some days I wish I had a wheelchair..but, then again..I am cautious to start using one. I have a med cocktail that consists of 18 pills per day. Rain..or any change in barometric pressure brings on pain flares.I see a psychologist every 2 weeks as I am also dx with Major Depression,Anxiety/Panic Disorder, Insomnia, Fibromyalgia, etc,all by=products of the RSD.
I have never had a pain level of 0..I WISH! The burn and/or deep ache is always present; however, the med cocktail that I take everyday tones the pain down.
Pleased to meet you.