Hi VWB!

So glad you found us...yes, it is a very good thing to be able to share experiences, thank you for your story. White Coat Fever, hahaha But you made a very good point about why doc are so vague at the beginning, scared of a suit, bet that's right. Which, if it's true that RSD can be halted by early treatment, just compounds the problem. Catch 22...

Anyway, this forum is a zillion times better than just googling - some of those medical descriptions of RSD scare the pants off you...at least talking to people who actually have it makes you realize there is Life after RSD, well, kind of...

I've been lucky. I have it in my left hand and wrist (following a colles fracture) and so far it hasn't spread, though I have RSI in my dominant right hand, causing more probs; never got the muscle back in my left hand though, despite lots of PT. But I have to use it quite a bit; painful, but I believe for me it's kept the progress kind of on a level plane..I do think there's something in the "use it or lose it" theory.

Oh yes! I used to have a 1600 VW beetle when I lived in the UK. Great little car, specially for the winter...

all the best