Hi Keep Smilin,
Welcome! Sorry to hear you are suffering. I am also pretty new to this site and the dx of RSD. I have learned a lot from others on this site. I have not had any nerve blocks yet but waiting to hear from my neurologist about having one.I also have tried many different meds and have a hard time tolerating high enough doses to help lessen the pain. I was dx'd in oct/08 (symptoms started much earlier) and sorry to say probably have varied between 6-9 pain scale for most of this time. The only time I did have relief (although not a 0) was after ketamine treatments. Are you seeing Dr. Schwartzman at Drexel. That is who I see. He is an expert in this field and can be very helpful.
Hoping for pain free (on at least low numbers on the pain scale!) days for all of us.
I'll keep praying
Hopeful
Quote:
Originally Posted by keep smilin
This is my first posting here but I must say I have been reading much information on my condition, RSD from this forum. You have all been so helpful and I am very happy to able to talk with you.. I have had RSD now for 2+ years beginning in my right knee, post injury and surgery. Sadly, I was diagnosied on my birthday...... and I am now having pain on my left side, my knee, foot and hip. As we all know..what a 4 headed animal RSD is, never the same for any of us. So complicated and painful!! I have had 4 nerve blocks, tried many meds which I could not tolerate and finally I had a SCS placed in my back last September. Unfortaunately, the SCS made it worse. I am now awaiting a consultation at Drexel next spring. My question is does anyone ever reach a zero pain level??? I know in my case, I have never been without the deep, burning, hot glass pain..24/7 for the entire 2 + yr.since I was diagnosised. I walk with the aid of a cane, decorative one may I add but necessary as walking is so painful and days are very long... I so appreciate any insight anyone can share with me and again.. It's my pleasure to connect with you all!!! Thanks for your support... We are in this together...
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