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Old 08-28-2009, 07:25 AM
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
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Hi. I thought I wrote you a response but don't see it here. Anyhow I can really relate. I have been to so many doctors and specialties and often have came home crying from the mental side of this. I often feel unheard and brushed off. I try to just stay in the day and work on what I can do as the next step. I have other issues going on with my eyes and I was dx with PN in addition to RSD. I have been to every specialist practically and test in the book. Nothing more to test for. A few thoughts I have for you. Have you thought of going to a place like Mayo or Hopkins since you do have multiple conditions?My current pain doctor which was like my 5th says how often doctors when they don't know what is wrong will say it is rsd even if it is not. Now some conditions like my PN if we could of figured out the why behind it then treating that can really assist the condition. Does your pain doctor deal with rsd a lot? I guess in my eyes some of the meds/treatments are supposed to enable you to do PT. I have had bad experiences with PT so am trying to progress on my own but am not saying you should not do PT. Just my experience. If I were to do this again the PT I would make sure the person worked with RSD a lot. My fear even with that as I went to Clevelnad Clinic and many knew a lot about rsd but still were clueless. I have heard good things about the pool so that may be something to look in to. Do you think the new popping and falling coule be from the MS and the other condition? Do you think maybe another neuro opinion? Have you had an emg/nc? I am sorry so many ?'s and not much help. Just some thoughts and hang in there
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"Thanks for this!" says:
Dew58 (08-28-2009)