Hi Annie,
Sorry - I don't think I was clear enough earlier. I take 40mg pred one day and none the next (I think it was to try to keep my adrenal glands active, like you said). Plus I'm on 150 mg of azathioprine and Mestinon every 3 hours. You are right though - I really do need to go see my neuro - it's been a year and he was a brand new neuro then. Because I don't kick up a fuss and am in a fairly stable condition I don't think they remember I still need attention! I hate putting people out AND loathe asking for time off work so I procrastinate until I absolutely HAVE to go - hence my complete inability to walk, function, etc a year and a half ago! Anyways, thanks for your input.
Kathy