HI lindkaye
I'm sorry your having such a very rough time...

It is devastating when you wait so long for an appointment expecting some concrete answers and a specific plan of treatment..only to leave, still with so many unanswered questions...because often they have no answers.

The ortho who did my foot/surgery wrote me off with no further appts. after he dx me with RSD two months later than when I diagnosed myself..he simply said 'adios..'

Shortly after, I found a new foot doc who was willing to treat me with injections and monthly check-in appointments., etc. (all of this has been a W.C. battle) Althogh he's certain I have entrapped nerves, he won't consider surgery 'cause of the RSD.....so I still feel undiagnosed that there may be structual things going on...
My P.M. doc kept pushing me into a spinal cord stimulator (declined) and more meds. She really had no answers to my many questions. Finally, she said there is nothing more she can do for me..

I've been able to fight for an appt. with a chief neurologist at a university hospital at the end of Sept. I hope it's a positive experience.

Somewhere out there is a doctor who will really work for and with you, and will try to diagnose these new symtoms instead of packaging them into RSD.
Dew gave such detailed and knowlegeable information regarding knee issues...there are so many great people on this board...

Try and get into a warm therapy pool if you can.

Slow, deep breathing has become my friend, too!
Hope4thebest xoxoxoxo