Well, MG isn't a condition "of the lungs" but a condition of the chest wall muscles!!! Let's at least get the facts right, dear doctors.

84% is scary low. I still think you should document the oximeter, how you look, etc. every single time it happens. Just keep the camera around and your husband can do it. You'll feel like you're part of a freak show but at least you'll have "proof" to show your docs. Like proof you are low on oxygen and NOT holding your breath!

I'm glad you are better but you know that won't last.

When someone whose MG is worse walks around, the stats go down. Then when they rest, they can go up. Take that oximeter with you when you are up doing things and see what happens. If your pulse goes up too, your heart is compensating to get you more oxygen. Not a good sign.

Don't be left alone if you get worse. What if you get so bad that you can't talk or walk? Some people even have tape recordings of them saying "I'm in a myasthenic crisis. This is a tape recording because my voice muscles are so weak I can't talk. Please send an ambulance to . . . (your address)."

I just hope someone can help you soon. In the meantime, kick back and relax and try not to get into trouble!

Annie