Quote:
Originally Posted by Dew58
I am Linda, my friends call me Dew..nice to meet you. Sorry it under the RSD umbrella. I too had RSD start in my right knee, injury in 3/07 that started burning immediately, then surgery 5/07..injury in 12/07 ,same knee,and surgery in 1/08..WC injuries. It took over 15 months for dx to be made..1 1/2 yrs of PT..My PM doc told me that too much time elapsed before he got to me for blocks, SCS, to do any good! I also walk with a cane, and have been called House as I use the cane on my right side,LOL!
I am on SSDI now, disabled because of this culprit. It has spread to both legs, spine, both arms and hands. Some days I wish I had a wheelchair..but, then again..I am cautious to start using one. I have a med cocktail that consists of 18 pills per day. Rain..or any change in barometric pressure brings on pain flares.I see a psychologist every 2 weeks as I am also dx with Major Depression,Anxiety/Panic Disorder, Insomnia, Fibromyalgia, etc,all by=products of the RSD.
I have never had a pain level of 0..I WISH! The burn and/or deep ache is always present; however, the med cocktail that I take everyday tones the pain down.
Pleased to meet you.
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Keep your art work flowing, Dew.. great to hear form you and I must say..I love the art work..very cool!!! I look for it...
Seems we have much in common.. the cane (only I walk with it on my left)... and rt. leg involvement.. I had too had surgery, twice in 07' being diagnosised with RSD in June, my birthday, of that year... only I did have the SCS implanted in 9/08... funny but it was not told to me prior to having it put in but after I was told.. we waited to long between the temporary unit and my permanent unit.. (4/08 until 9/08)... and my RSD had advanced.. it does not help and it actually hurts me...The neuro surgeon ( I ahd at the time, I dumped him prior to the surgery.. he missed a herinated disk in my back too)..... wanted to wait until a smaller unit was manufactured and due to that.. it cost me the chance to have it be useful.. although others may benefit..... We take our days as they come.. always a new adventure but I believe we must always stay hopeful and never tire from each days challenges.. but it's support and patience we need... Thank you!!!!Hug for a better tomorrow
