That is exactly why I like to learn about illness that I have and learn as much as I can and also from others because sometimes doctors don't know or don't take the time.
That is good that websites are open and able to discuss what is happening to us. Sometimes you can feel like is it just me, then you learn it is not. It is just an encourgement and you have more confidence to ask questions with your doctor.
Giving you all a big "Thanks"