Hi Danielle,
As you know as a mom, there is no time for yourself. I do work a full time job and with the doctors appt. and pt/ot and other various appointments, I am just happy when she finally gets into bed and sleeps.
As you know that is few and far between for RSDer's. But, she is sleeping better since the infusions. She had a fall and has to take some pain pills, but she is still pushing forward. My greatest moments are seeing her smile, it is unbelievable. That's all I need, I promise. I have great friends with whom I receive support. But, thank you for your kind words.
Much love,
Sandy
Quote:
Originally Posted by daniella
Hi. I am so happy for you and your daughter. I understand as a mom how this takes a toll on you as well. I think as my mom is my hope and strength I have a few thoughts through the 2.5 years what is working and not. Of course this changes. I agree first to stay in the day. For my body I will make progress to have a back slide so it is very key to not give up hope and remind myself there are up and downs. I encourage you to do for yourself. For the first 2 years of my condition my mom isolated and did nothing for herself. This gave her no break or friend support which is very needed through this. It truly makes me happy that she does for herself. So take a hobby class,get your nails done etc. I know my mom just wants to take my pain away and feels so scared. There were times we had no idea pre dx what was going on cause I had multiple conditions going on. I am older then your daughter so I think had more fears and I know my mom did too but she was my advocate of getting care and staying hopeful. That is all you can do as a mom and be there to listen. I am just an email away if you want any support too or your daughter. One day at a time or for me one hour at a time often
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