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Old 08-31-2009, 04:49 PM
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Roxie2007 Roxie2007 is offline
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Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
15 yr Member
Roxie2007 Roxie2007 is offline
Member
Roxie2007's Avatar
 
Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
15 yr Member
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HI Trish! Yes I remember you too. How are you doing these days? Since I get IVIG infusions weekly I don't have any bladder issues! Interesting huh?? The infusions are expensive but it's too bad everyone with IC couldn't get them!
My Neuropathy on the other hand has gotten much worse.....so painful! So my Pain Management dr. recommended the Spinal Cord Stimulator surgery....the surgery is a rough one but the stimulators work. I'll be glad when the 3 incisions get healed up! (if you've ever had a therapist use a TENS unit on you because of a pulled muscle etc...that's what the stimulator feels like....only it's inside the body)
Take care....It's great hearing from you! Roxie

Quote:
Originally Posted by Trishann View Post
Hi Roxie,

I believe I remember you from the interstital cystitial website (adminstrator Jill). I talk with Ronda (LeeLee88) sometimes on PM but don't post or rely much on the board.

Sorry to hear the problems with your stimlator, don't really know much about it but thought I would drop in to say "HI". It seems like one health problem after another doesn't it.

Hope you start feeling better too, Trish
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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