Quote:
Originally Posted by daliadeeelite
hello Ken, hello all,
my neuro - took me off betaseron (he could clearly see I was not happy with this medication and he was not either).
he recommended mitoxantrone (chemo. treatment) - in all honesty, I am scared and not sure I should go through with it after what I have read - but ken, your wife seems to be handling well...I TRULY DO NOT KNOW WHAT TO DO. In a few weeks, I have an appointment to discuss the treatment with the doctor who will give them to me. every three months for the maximum of 6 treatments. My neuro seems confident - he recommended it to 20 of his patients, and he is happy with the results.
but I am still not convinced and I am confused about it...please help me decide  |
Daliadeeelite,
Kim handled Novantrone about as well as I suppose anyone does. But the thearapy was stopped early. I can't report on what would have happened if Kim had completed it. I can say that it was the doctor that was expecting a better outcome. The doctor didn't see what he was expecting so he stopped it. This implies to me that it does work for others and I believe that.
Given that - I will say that antibiotics have done way much more for Kim than anything else. I understand that it doesn't make sense to try something that seems off the beaten path when there are other options that others seem to have high regard for. It really should come down to an objective assessment with facts and data. Don't depend on what others say and then find yourself going with the person who seems the most credible. Get the data yourself and see. Good Luck with your discernment!
Ken