andi1978, greetings. Chiari is very misunderstood and you do need an expert in the field. I see you live in Bristol, VA. Being from VA, know you are limited in getting local quality medical assistance.

The hospital at UVA, Charlottesville has an excellent neurosurgery dept. that knows how to deal effectively with Chiari patients. In addition, Medical College of Virginia, Richmond also has an excellent neurosurgery dept knowing all concerns about Chiari.

These are 2 good resources for you. Your PCP may have to refer you to get in to either dept. And travel will be involved, but might be worth the drive.

Peace,
David