Member
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Join Date: Aug 2007
Location: Melbourne, Australia
Posts: 284
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Member
Join Date: Aug 2007
Location: Melbourne, Australia
Posts: 284
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Hi Billie,
I am in Australia and even though Prepulsid (Cisapride) is now a non-approved drug globally, doctors here in Australia can get a special exemption to order it for compassionate reason but have to get a permit first through our TGA (Therapeutic Goods Administration). Perhaps a similar process can happen for you wherever you live.
This journey to 'diagnosis' is a long one and for me at the moment I rest in the Fibromyalgia basket but also have severe Gastroparesis along with 25 other symptoms - whether these are part and parcel of Fibromyalgia or part of something else yet to be discovered is anyone's guess!
Interesting though neither of the Neurologists I consulted with mentioned/considered Fibromyalgia in their provisional diagnoses.
I wish you well in your journey.
Megan
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