Hey Annie,
Thanks, Annie...I'll try not to, even though it's a bit tempting (to overdue it, I mean)...lol
The book's great...It's like having a little Annie that you can read at any time-seriously! lol....Many of the things in the book are the same things that you say...It talks about heat, caffeine, all the medications to avoid...Also gives patient accounts...and the best part about it, is that it's for an MG patient, not another doctor...
The doctor who edited it seems to be fantastic...My doc. is pretty good, too...She makes sure MG patients get IViG/plasmapheresis...The treatments don't seem to be limited to people who are about to go into crisis, but people who are disabled by persistent symptoms, whether it be ptosis, limb weakness, bulbar, etc., so that's really good...
Has your doc. ever recommended IViG/plasma-exchange for you? If so, how did you do on it?
I know what you mean about the socializing...I'm still not socializing too much either just because I'm afraid I will run out of gas...lol...I'm going to wait 'til the exchanges are all done, then I might go out somewhere and do something a bit fun--hopefully, the old helium balloon will stay high up in the sky and not creeping it up on my shoulder in wait
Nicky