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Old 09-03-2009, 08:20 AM
ras1256 ras1256 is offline
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Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
ras1256 ras1256 is offline
Member
 
Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
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Hey baby girl - hot head, huh? LOL

Were you ever able to get someone to check you for the viruses? I had this exact same problem, which cleared up completely within 4 days of starting my high initial does of the anti-viral. It's back in much milder form now that I'm only taking 400 mg per day. My LP results should be back soon, and I'll for sure let you know about the viral aspect - I just feel there is something (infection) hidden on you that is causing your MG to be so serious now. I posted my discussion with the MDA neuro about how this viral thing could affect the MG.

As for swollen ankles - yes I had huge ankles and went to the doc about it. The had me buy some compression stockings ($38.00!) which I wore initially for a few days. Now only if I swell. I was so surprised to see how thin my ankles and feet really are!!LOL. It could be lymph passages not circulating as they should, rather than blood. Blood would cause discoloration and I was told to watch for that, but didn't have it - other than my little spider veins which they were'nt real concerned about.

Try the stockings, and please get someone to run the blood test for the antibodies to the whole range of viruses they can test for! You are sounding too much like me, and you're too young to have to deal with this, but if you have an active virus they can control with the viral meds, you can get better control of the MG and hopefully get off some of that other crap you're on!

Love to you, Erin.

Quote:
Originally Posted by erinhermes View Post
Hello everyone! I hope this post finds you all strong and happy!

Recently I've had really bad problems with my head heating up - sweat will just pour down - I won't be hot anywhere else, but it feels like my head is on fire! I use a bag of ice to cool it down, but wonder what it could be.

Lastly, my ankles have been HUGE recently - the size of my calves.
I called my neuro to try and get some water pills but he wants me to go see my PCP = he doesn't want to "mask" anything and says there is no reason for me to retain 10-15 lbs of water weight in my ankles........


Thanks!
Erin

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