Quote:
Originally Posted by jccgf
Hi Marty,
Don't EVER stop taking B12 again! And definitely aim for a level at the TOP of range, 900 to over the top, and keep it there. Forever! I didn't realize you had been that low. My level was 294 when I was dx'd B12 deficient, and I had some pretty substantial symptoms over a period of years. Even though it took many years before a doctor thought to check for it, I was lucky in that he realized that 294 (150-1100) was low enough to be causing me neurological symptoms. Not much different than your 316.
My opinion, based upon my personal experience and what I have read, is that your B12 has been TOO LOW and could definitely be contributing to your symptoms. When was the last time it was tested? 2004? Well, stick with it this time, and it wouldn't hurt to boost it to 2000-3000mcg daily, preferably methylcobalamin, until you are sure you are in the HIGH range. Then you can consider dropping it to 1000mcg as a maintenance dose forever (with a B12 test now and then to be certain you remain in the HIGH range).
Look forward to hearing your stool test results.
Cara
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Cara your the first person to think that strongly about my B12. I've been on the boards and to many doc's for many years but honestly I can't say I've stayed on methy b12 for a constant year even. SAD! I'm in allot of pain most of the time (I'm at my desk at work with no shoes or socks on at present) so you would think that would be a motivator but I get discouraged and give up.
When I tested in 04 I was on B12 at the time so I'm really not even sure that's a correct number to what my B12 stores were. Actually I have a printed copy of an email from Rose in my folder here dated feb 03 so who knows what my B12 was before that because I was taking B12 than per her suggestion. I think over the years I had an abortion problem mainly from the amount of diet coke I drank. At the time I thought it was nice because I thought of it as a diet tool, everything went straight through me. I have no changed me ways giving up soda drinks all together, I don't drink or smoke I exercise allot and I'm trying to eat right along with taking a huge suppliment regimen that mrsD help me with.
The discouraging factor is in reality I will most likely never heal more 50% from where I'm at now but it's something I have to do for the rest of my life or it will keep progressing. It still my keep progressing unless if find the cause and that's probably several things. I reserved the book "Nutrients for neuropathy" from the library and it's in so I'm going to pick it up on my home today. I hope it's good!
THANKS SO MUCH FOR ALL YOUR HELP!
