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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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I'm so glad you are BACK, Becky!
Oh honey, you have been MISSED! I smiled all day after reading your post!
I am so very happy that you are back @ work! I bet you love being out in the real world again!
I am still at the hospital, but am looking forward to leaving tomorrow - as always, my IV IG has really helped! Everyone here has noticed a huge difference and tells me how much healthier I look! I must have looked baaaad! LOL!
I have also met some of the most amazing people here - I make new friends every time I'm here - I'm so very blessed! There is a woman here who has the EXACT same story as me - except she was dx'ed 27 years ago and was just transferred from ICU to the neuro ward. We are planning on getting together just to play cards and hang out. She is one tough cookie!
I gave poor Mike the night off and have my mom here with me. He has been working his tail off recently and I feel so sorry for him! I bet he sleeps like a baby tonight!
I asked Dr. I about the "acute" label and he was (for once) very pc with is response. The thing I love most about him is the fact that he never sugar coats anything, but I think he could see the fear in my eyes and was very gentle with me. He did say that I "technically" have acute MG, but I am still better than most of his patients and that it usually takes at least 2 years b/4 anyone goes into remission. I am in no real danger. I am stronger now. I am also having the shunt put in (in addition) to the port, that way I can be infused or have the exchange every 4 weeks or so. He takes very good care of me.
I am still torn about going to NY so soon after leaving the hospital. On the one hand I am so ready to see Lilli and on the other I don;t want to be foolhardy and end up back here sooner than expected. I'll see how I feel this weekend and play it by ear, though I have been cleared by all of my drs!
Again, I HAVE MISSED YOU!!!!!!!! I am so glad that you are able to get up and around though!
Enjoy it! You deserve it!
Love,
Erin
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Erin
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