JCPA,
There's another less thought of good reason for a good PCP. When you have an illness like MG, as you've read, you generally end up with more than one specialist. You also have blood labs, and other tests being run often in different places. The PCP gets a copy of all tests, etc. and is an excellent source for this information when needed if you don't have all your records. Of course, the quality of the PCP is important though.

I had a PCP for years before my final dx of MG. I just loved him and he seemed very competent. His whole office new me on sight and he and I were on a first name basis. After I was diagnosed, though, he continually gave me advice that wasn't good - like that I needed to start jogging to get into shape, drugs I shouldn't take, etc. At first I chalked it up to the rarity of MG, but after a while I felt that he was kind of lazy. In my opinion, if a PCP takes on a "special needs" patient, they should make it their business to educate themselves on that person's diagnosed condition to avoid giving bad advice.

I have fired him, and when interviewing new docs, I always asked if they had more than normal knowlege of MG. I found one who is very familiar with the disease and what to avoid, etc. I feel much more comfortable now, and he has made a great contribution to my medical care.

It may be a shot in the dark since your neuro is so far away, but I feel you should ask your Neuro to give you a recommendation if at all possible. I did that, and did get names of some docs she had respect for, but ended up choosing this doctor closer to me based on my interview with him. I too have to travel a distance to get to my neuro, and unfortunately she was referring docs close to her location.

Good luck with your search.