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Old 09-04-2009, 02:07 PM
jccgf jccgf is offline
Senior Member (jccglutenfree)
 
Join Date: Aug 2006
Location: Wisconsin
Posts: 1,581
15 yr Member
jccgf jccgf is offline
Senior Member (jccglutenfree)
 
Join Date: Aug 2006
Location: Wisconsin
Posts: 1,581
15 yr Member
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Quote:
My blood levels of B12 were 241 (200 - 800)
Doctors told me its all normal
As you seem to have discovered, this doctor was wrong.

I had many of the same symptoms as you, MetalMx, due to a B12 deficiency. My B12 level was 294 (150-1100), but thankfully, the doctor who finally discovered it realized that was a suboptimal B12 level, particularly in someone with neurological problems. The problem is it took 5 years, eight other specialists, and a dozen visits to my primary care doctor before I found Dr. Right. Some labs have been starting to footnote that anything under 400, particularly when accompanied by neurological symptoms, warrants further investagation. B12 deficiency is under-diagnosed and under-appreciated for the serious neurological problems that can occur.

I've been taking methylcobalamin daily for nine years now. Many of my symptoms were gone within months, but some improved slowly over time. Some of the cognitive problems are still with me, but to a much lesser degree. I'd say I improved 95-98%. How long have you been taking the B12? I posted about my symptoms on your thread in the MS forum.

Cara
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