The first year after dx was definitely the emotional rollar coaster for me. I know at first I was relieved it wasn't some of the nastier stuff they were worried about and that I knew what was going on. Then I was in shock, disbelief, angry - let the up and downs begin. I still have some mini-breakdowns, but nothing like that first year.

Glad you have a compassionate neuro. That is so cool! I know I have to take a list to my neuro every time I see him, and I put on it my top three complaints that I know need to be addressed during the appointment. Sometimes I'll write a few more if I think they also need to be talked about.

Hang in there!