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erinhermes · 09-05-2009, 07:07 PM

Hey honey! I know what you mean....MG is scary and lonely, but you DO have support here! I know it's NOT the same as having someone wrap their arms around you or hold your hand and pray with you, but I AM praying for you!

I have been told that ANY antibiotics can make you feel weaker, but I have to take them frequently, so I just try and stay in bed on those days!

You are right! He is by your side. You will go into remission if it is His will. I pray the same thing all the time! There HAS to be a reason for this. Has to be!

There is nothing wrong with getting down. That is totally normal. I think I'd be afraid of someone who was always "up" - esp with this darn disease. Vent all you want. We are HERe for you!

I miss my old life as well. I hate being in the hosp all the time and looking like a human pin cushion! It just plain stinks! I am VERY grateful to be HERE, though, even on my worst days! When my face was finally able to move I think I smiled for several months! IT felt so great!

You have been through so much. There is only so much ANYONE can take before they get down. It will get better though! I believe that with my whole heart!

If you want to contact me 24/7 email me @ erinhermes@hotmail.com

Love,
Erin

Quote:

Originally Posted by JCPA

I joined this group a few weeks ago. I know that there are some good people on here who have had MG for a long time. I'm new with it as being just diagnosed in July. I had been having symptoms most of this year. Anyway, last Wednesday I started with a sore throat. Then I felt like I was getting a cold. On Thursday I ached so bad all day. I really thought it might be the flu but I didn't have any fever. Anyway, I went to the doc and the flu test was negative. They gave me Levaquin. I didn't get it filled as I felt like it might just be my MG stuff making me ache and get weak. I had traveling 8 hours to my Neuro on tuesday so I thought that I was just paying for it on those days.

I actually felt better Friday but today (Sat) has been rough. I am so weak I can't hardly make it. My husband filled the antibiotic and i started it today.

I just think this stuff stinks........

We were having something at my church tonight and my family went without me as I wouldn't want them to miss anything. I know that God is with me thru all this, but when this MG stuff starts interfering with my life like this it really gets me down. I usually a very positive person, but this stuff just gets to me. The weakness is overwelming sometimes. I praying and hoping that I go into remission after my thymectomy at the end of October if is HIS will. I know HE will never leave me nor forsake me.

Thanks for this group here....I have really enjoyed reading the posts and I have gained alot of knowledge from you guys.

I hope the Leviquin is not making my symptoms worse. I was just wondering if any of you have ever had any problems with it.

Thanks so much