Quote:
Originally Posted by krank
I just found this forum and I am so thankful for it. I was diagnosed a year ago with crps1 in the right ankle after a work injury . I have had five epidurals, aggressive PT and have been on neurotin 1800mg for the last 6 or so months. It looked like I was going into remission until about two weeks ago I felt some of that needles and pins thing going on and it didnt stop. The next I knew the little demon came back with a vengance and has started to climb up my leg. I have been eating vicodin like candy. My PM wants to install an SCS. A boston scientific model. Has anyone heard of this type and is there any other treatment (beside drugs) that can help ?
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Howdy Krank,
Before you carry on, you might want to get a good second opinion?
Are you near a university hospital?
If you can, get to the cheif of neurology.
Ask your doctors hard questions! See if they have experience with RSD, and what kind?
This is a "Tough Row To Hoe"!
So, be sure your doctor(s), are willing to go do the "farming" with you!
Some get frustrated, because improvement can be slow. (It can be difficult to keep it from spreading).
So, You must take command of your disease.
Settle for nobody, but the best!
Fortunately, RSD is not as little known as it was when I got it ( 83 ).
It took me 7+ years for a diagnoses, and that came from my chiropractor!
Then, a couple more years, for some relief.
I was put on methadone, and I'm on it til this day.
Along with other things.
So, some days, you're going to need to pull your 'boots' on, and get out to some doctors!
And, you may meet some who aren't up to spec.
Jumping into an SCS is quite the leap.
What are you current meds?
Any other things going on besides the RSD?
Unfortunately, I don't know of anything besides drugs, that can help.
Of course,
It is a "Use it, or Lose it, disease".
So, keep moving!
Keep in touch.
We're all here for you!
Pete