Junior Member
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Join Date: Aug 2009
Location: Texas USA
Posts: 49
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Junior Member
Join Date: Aug 2009
Location: Texas USA
Posts: 49
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You are not alone
You are not alone. Every illness (condition) that I have, somehow the doctors connect to my RSD and dismiss as "RSD is very hard to manage". I have accepted that some day, I will have cancer throughout my entire body before it is diagnosed, simply because no physician wants to even entertain the idea that something else might be causing symptoms OTHER than RSD.
I have accepted that fact, but now I have a new problem. I have found a combination of medications that allow me to have a fairly decent quality of life. My problem is, because one of the medications is Morphine, I can not find a physician ( pain management specialty or otherwise ) that is willing to write for the morphine. It isn't that I take a large dosage, I prefer the extended release over the immediate release, but I am simply unable to find a physician willing to write for the Morphine. I've had numerous nerve blocks, I've tried many different medications - nothing works like the combination I have found. I draw the line at having a pump implanted to administer the medications and when the physicians find out I am not willing to undergo this surgery, they give me the 30 days notice and boot me out.
It is SO, SO frustrating --- as you well know.
Just know that you are not alone. I don't know what is wrong with physicians today -- especially those who choose to go into pain management. You would think that if there was a combination of Rx that worked for a patient, they would be happy to help their patient. NOT SO IT APPEARS! RSD is a terrible condition - one that I have had for 7 years and as of today, I have never found any physician that I felt was on top of this condition both in knowledge & compassion.
I feel sorry for you, but you are not alone.
Good Luck,
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