Quote:
Originally Posted by Cake
I have two questions for you beautiful people,  I'd love to know if anyone can shed any insight on this.
Lately an occasional cramping in my thigh muscle in my RSD leg has turned into a constant cramp, with the whole thigh area always rock hard and my muscles contracting/jerking quickly over and over again. I don't know if it would be called a spasm or contraction or jerk.
I liken it to a pregnant belly when the baby moves: If I put our tv remote on my leg, it gets jolted around and often gets knocked off my leg by the severity of my thigh muscle jerk- just like when you're pregnant and put the remote on your belly and the baby kicks so hard the remote gets pushed up.
Often my leg will come right off the lounge or bed when it spasms. This happens multiple times each day (this laptop has been bumped up about 6 or 7 times while I've been writing this message!) and through the night, and although the jerks don't hurt intensely, it's not nice and the cramping and rigidity hurts.
I also get the same muscle jerking in my right foot, with my foot either pointing down suddenly or jerking to the side. It seems to be the muscles on the top of my foot that are constricting.
Is there a name for this type of jerk/spasm/contraction and what my thigh muscle is like now? Would this come under the heading of dystonia or not because there's no twisting of the limb?
Does anyone know of a good treatment option for this symptom? Is this where botox can come into play?
My other question is about body temperature. I've never had an issue with this. I've always needed to keep my RSD affected limbs warmer than the rest of me, but lately my body temperature regulator has been way out.
When the rest of my family are cold, I'm sweating and feeling like I'm in an oven. When I'm freezing cold all over and want the heater on, my husband is turning the air conditioning on because everyone else is hot! (As we have 6 people in our household, I'm usually outvoted and have to get a blanket!)
This is normal for an RSDer, right? That probably seems a dumb question as I've had my RSD for nearly 9 years, but this is all new stuff I've never dealt with in this way before! 
If any of you would be able to share your experiences with (or knowledge about) these symptoms, I'd appreciate it.
x Kate |
I use Flexeril for spasms and after a period of about 2 weeks, it has done wonders for the spasms. I've had RSD for 7 years and still struggle every day with the temperature regulation. I am miserable most of the time when I am in a room with others controlling the air conditioning / heating. I have tried many things for the temperature problem. I have found that Klonopin 1 mg BID works great, after you build up a level in your body. Believe me, it makes all of the difference in the world. I don't know why or how (and probably the docs don't either), but this has helped me immensely. I was on Baclofen for a while also, but found Flexeril helps just as well & is much less expensive. However, the Flexeril level must be kept constant in your body or you are wasting time.
Good Luck,