Quote:
Originally Posted by fishnchef
Here is a strange predicament, although as easily as it seems to be
happening, I am sure that it is not too rare. Short version because
alot of you on here already know my story. Had a great job with good
money and good insurance. Injured my knee at work. Surgery.
Surgery. RSD.(woohoo!) Worker's comp insurance. They say: take
tests, injections, therapy, see our doctor, ........you're healed!!
Now I am cut off of money, seeing my doctors, my medication, blah
blah blah;albhalbhalbalhbbh. My doctor is still seeing me once a
month or two. I pulled myself off the meds on my own for a while
when it was warm. Now I'm paying for it. I do not recommend coming
off your meds if you know you really need them. I was just trying to
let the insurance company know that I am willing to try different
things to see if they will work. Well they didn't and what do I get
out of the suffering through things their way.....cut off.
Here's my question, what are some of the medications that people are
taking or have tried through this RSD? I need to find an inexpensive
replacement for the Nuerontin and for the Fentanyl. I have found
that I can get them much less expensive on the online pharmacies but
$2600 for pain meds is out of the question. I have had a hard time
coming up with $26 for the Gabapentin from Costco's online pharm.
company. fire away. This will give something else to argue with my
doc about. Thanks
J.
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I have suffered from RSD for 7 years. Throughout that time I have tried numerous drugs
Lyrica, Neurontin, Fentanyl, on & on - some too expensive to take long term, some just didn't work. I have found .. after MUCH TRIAL and PAIN .... a combination of medications that are reasonably priced and work for my pain and all of the other symptoms RSD throws at you. Here it is - and it does work. You need to realize that you have to build a level of the drugs in your body first, and then keep that level and I believe it will help. HERE IT IS - Tried & True for Me:
Morphine Sulfate Extended Release ( MS Contin CR ) (Dosage to be tweeked
by treating MD)
Morphine Sulfate Immediate Release - For Breakthrough Pain Only
An Anti-Seizure Medication (I believe this is crucial)- Klonopin 1mg BID
An Anti-Inflammatory Rx - I take Lodine 400 mg - but there are others.
An Anti-Spasmotic Rx - I use Flexeril. It works but you MUST build up a level and keep that level at all times. I prefer Soma - but docs don't like to write RX for Soma (have no idea why)
I keep Phenergan around because if I miss my meds, and my pain comes back with a vengeance, I will be vomiting and then passing out. SO, for what it is worth --- THESE DRUGS / THIS COMBINATION WORKS. GIVE IT A MONTH. IF YOU KEEP IT IN YOUR BODY AT A LEVEL THAT WORKS, IT SHOULD GIVE YOU A BETTER QUALITY OF LIFE FOR A REASONABLE COST.
GOOD LUCK.
P.S.: I have T R O U B L E FINDING DOCTORS WHO WILL WRITE FOR MORPHINE FOR EXTENDED PERIODS. I HOPE YOU DON'T HAVE THIS SAME PROBLEM.