PetPuppy, have you and your neuro considered Tysabri? It sound like it would be an option for you?

I know what you mean about not trusting your Neuro. Sometimes I think they are way too Steroid happy. It's your body and your decision. If the steroids aren't helping you, they have a great potential to hurt you. Investigate for yourself and make a decision that is right for you.

I hope you feel better soon. ((((Petpuppy)))))