I remember a few years back when I was in that spot. I honestly never thought that it was ever going to be OK. I could hardly walk even with a cane. My neuro was suggesting disability and a rollator and heck, why not a scooter, too. I was so freaked out because it was a very rapid and constant decline. I stayed that bad for awhile, too. It was at least 2 years. I had one neuro convinced I was PPMS.

I don't know whether it was the pulsed IVSM every few months for two years, or all the tweaking of the Baclofen dosage, or divine intervention, or a two year long flare, but I am so much better. I don't even use the cane anymore, but can't really walk long distances or keep up with normal walking speed. I do have other reminders every day. I'm still quite spastic, get fatigued, don't handle the heat well, and my eyes are still screwy, but when I remember back to the beginning, I see the change.

Could you be in a flare? Have you ever done the IVSM - I don't remember? It could be beneficial. I couldn't believe the difference after my first infusion. It took a couple weeks, but one day I realized that I didn't feel as awful.